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Traveling With Lupus

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Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide!   Contents: Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emerg...

The Heart of the Matter

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Lupus and the Cardiovascular System Lupus and the cardiovascular system are about as friendly as the Montagues and the Capulets.  In fact, the cardiovascular system, (which includes the heart and blo...

Lupus and Anemia

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  INTRODUCTION If you have lupus, there is a significant chance that you have experienced or are currently living with, the medical condition known as anemia.  It is reported that nearly half of...

Lupus – A Kaleidoscope Illness

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INTRODUCTION At this point, you have probably discerned that things look a little bit different at our organization.  Formally known as Molly’s Fund, this week we changed our name to Kaleidoscope F...

“WHY ME?”

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The Big Lupus Question WHY ME? When diagnosed with lupus, what often follows is a flood of various emotions and wake after wake of seemingly drowning questions. It is quite possible that YOU are curre...

Good GRIEF!

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Lupus and the Roller Coaster Which is Grief Grief (as defined by dictionary.com): “Keen mental suffering or distress over affliction or loss.” Grief (as defined by someone diagnosed with lupus or ...

Lupus and stem cell transplant therapy

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INTRODUCTION Recently, there has been an influx of research about stem cell therapies being used as a potential treatment for SLE and other lupus overlap diseases.  At Kaleidoscope Fighting Lupus, we...

New Year’s Resolutions!

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A New Way of Looking at New Year’s Resolutions! What are resolutions? By definition, a resolution is the action of solving a problem, dispute, or contentious matter.  It is a solution to, an answer...

YOUR ANA: Facts and Fiction

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Two Scenarios SCENARIO ONE: Sarah’s heart is racing as she sits in her doctor’s office awaiting her test results.   The visible facial rash and joint pain that appeared after her baby was bo...

Lupus and Intimacy

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INTRODUCTION Living with lupus can affect you physically and emotionally.  It can also affect the way you view your self image, and how you feel (good or bad) about sex and intimacy.  Fatigue, joint...

Low-Dose Naltrexone

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The Use of Low-Dose Naltrexone for Lupus and Other Overlap Conditions WHAT IS LDN? Low-dose naltrexone or LDN is a medication that is getting more attention because of preliminary research showing pro...

Lupus and Exercise

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DISCLAIMER We, at Kaleidoscope Fighting Lupus, are not doctors or physical therapists.  Therefore, we cannot assume to know the appropriate exercise program for you with your specific health limitati...

Lupus and Hormones

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INTRODUCTION Hormones are unique messengers that maintain and regulate numerous bodily functions. For the last several decades, more research has suggested the sex hormone estrogen, in particular, is ...

The Breakdown List About: Benlysta

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Contents: The Good The Bad Where did it come from? How does it work? Conclusion   I have been listening to all this Benlysta talk.  Have you?  If you haven’t heard by now, Benlysta is the fir...

Where Should You Live if You Have Lupus?

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One of the most often asked questions that comes our way at Kaleidoscope Fighting Lupus is, “Where is the best place to live with lupus?”  Putting it mildly, that question is about as complicated...

Lupus and CellCept®

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WHAT IS IT? CellCept® or mycophenolate mofetil, is a medication that was first prescribed to treat people who have had an organ transplant.  Over the last 15 years, it has been increasingly used mor...