Category: Main Blog

Lupus and Intimacy

INTRODUCTION Living with lupus can affect you physically and emotionally.  It can also affect the way you view your self image, and how you feel (good or bad) about sex and intimacy.  Fatigue, joint...

Lupus and Holiday Stress

Lupus and Holiday Stress  The holidays are here and ‘jingling along the way with them’ are the mixed Santa’s bag of emotions that creep-up on us during this special season.  Along with the goo...

Lupus and Exercise

DISCLAIMER We, at Kaleidoscope Fighting Lupus, are not doctors or physical therapists.  Therefore, we cannot assume to know the appropriate exercise program for you with your specific health limitati...

Lupus and Hormones

INTRODUCTION Hormones are unique messengers that maintain and regulate numerous bodily functions. For the last several decades, more research has suggested the sex hormone estrogen, in particular, is ...

The Breakdown List About: Benlysta

Contents: The Good The Bad Where did it come from? How does it work? Conclusion   I have been listening to all this Benlysta talk.  Have you?  If you haven’t heard by now, Benlysta is the fir...

Lupus and CellCept®

WHAT IS IT? CellCept® or mycophenolate mofetil, is a medication that was first prescribed to treat people who have had an organ transplant.  Over the last 15 years, it has been increasingly used mor...

Self-Advocacy

Your Life. Your Right. “You are lucky…you could have died.”   Those were the ominous words that came out of my rheumatologists mouth after she discovered the reason I was ill was due to ano...

Adapting to the Pain

Does the Pain EVER go Away? For someone who is newly diagnosed with lupus, one of the first things he or she will anxiously ask is… “Will my pain ever go away?”  Though I am not a doctor, I...

Summertime Blues

The song “Summertime,” made famous by the incomparable Ella Fitzgerald, starts like this: “Summertime, and the livin’ is easy… Fish are jumpin’ and the cotton is high…” Now, If you...

Scleroderma: What you need to know

Contents: What is Scleroderma? Who develops scleroderma? What causes scleroderma? What are the Signs and Symptoms? How is it diagnosed? How is it treated? What are some complications of scleroderma? A...

Remission Guilt

Is it Okay to be well? When I was in the hospital with lupus, I made friends with all the other teenage “regulars” who, like me, were frequent admits of the eighth floor.   All of my new friends...

AZATHIOPRINE and Lupus

What it is: Azathioprine or the brand name Imuran, is a drug that was originally developed to prevent organ rejection in people who had received a donor transplant.  Currently, in addition to its ant...