Blog

Lupus Hair Loss and Alopecia Explained

Getting diagnosed with lupus is scary and upsetting enough without the added stress of potential hair loss. The physical ramifications of what systemic lupus erythematosus (SLE) can do to the body internally are indeed very scary. But the emotional toll of looking in the mirror and seeing a dramatic change in our external appearance is…

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The Lupus Butterfly Rash: Information You Need to Know

At least half of individuals with lupus have the malar – or butterfly – rash. Read on to learn more about this common, characteristic condition for those living with lupus. Introduction Causes of the Malar Rash Diagnosing Malar Rash and Lupus Treating and Preventing Malar rash Mental Health and Malar Rash Dr. Nisha Desai:  Lupus…

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Lupus and Photosensitivity: When the Sun is Your Enemy

If you have lupus, you might be photosensitive – meaning you have an unusually strong reaction to sunlight.  In fact, about two-thirds of the people with lupus are UV light-sensitive.  Many experience an increase in lupus symptoms after being exposed to ultraviolet (UV) rays, either from the sun or from artificial light. Are you photosensitive?…

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Traveling With Lupus

Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide!   Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emergency This time of year, many people enjoy traveling.  Exploring different places, cultures, foods and sights can be inspiring and life-changing. However, the stress…

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Lupus and Employment: Knowing Your Options

Lupus not only can have a profound impact on your physical health, emotional well-being, and personal relationships, it can also have a profound impact on your work and professional life. Introduction Working with Your Employer to Raise Awareness and Feel Valued Making the ADA Work for You Alternative Work Environments When Working isn’t an Option…

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The Dynamics of Relationships – Lupus, Family and Support Systems

Whether you consider your family as the family you were born or married into, the one you’ve created with your partner or spouse, or one you’ve hand-picked from close friends over the years, the strong support system these people provide in your life is as vital to your health and well-being as any medication that…

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The Male Faces of Lupus

As a musician, rapper, recording engineer, and composer, Skrill-Dilly (née Andrés Kemp), 29,  is used to marathon recording sessions, frequent travel, and a physically demanding lifestyle. There was a time when you couldn’t keep him away from the strip club. If there were dollars to be tossed, a party to be turned out, or bottles to…

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Symptoms of Lupus in Men

Lupus is not a women’s disease.  It is a disease that can affect any demographic category and gender, though it affects women the most. This article outlines how to recognize the symptoms of lupus in men and why they experience lupus differently compared to women. Introduction Why is SLE less prevalent in males? Symptoms of…

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Lupus and the Military – A New Kind of Mission

As the military has seen an increase in the number of women in active duty the last 40 years, there has been a significant increase in the prevalence of lupus in the ranks. Out of the over 200,000 women who serve, over 50% are women of color, mostly black and Hispanic. We already know that…

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Diagnosing Lupus and Lupus Tests

Do you think you may have lupus?  Understanding the complex, multi-step process of getting a lupus diagnosis is one of the most common questions we get and there is no easy answer. The goal of this blog is to describe the most common aspects of the diagnosis process so that you can approach your healthcare practitioner…

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