Category: Coping With Lupus

Traveling With Lupus

Set yourself up for success by reviewing the Kaleidoscope Fighting Lupus travel guide!   Contents: Preparing The Flight The Hotel Room Getting Around Town The Food The Medications In Case of an Emerg...

“WHY ME?”

The Big Lupus Question WHY ME? When diagnosed with lupus, what often follows is a flood of various emotions and wake after wake of seemingly drowning questions. It is quite possible that YOU are curre...

Good GRIEF!

Lupus and the Roller Coaster Which is Grief Grief (as defined by dictionary.com): “Keen mental suffering or distress over affliction or loss.” Grief (as defined by someone diagnosed with lupus or ...

Lupus and Holiday Stress

Lupus and Holiday Stress  The holidays are here and ‘jingling along the way with them’ are the mixed Santa’s bag of emotions that creep-up on us during this special season.  Along with the goo...

Lupus and Exercise

DISCLAIMER We, at Kaleidoscope Fighting Lupus, are not doctors or physical therapists.  Therefore, we cannot assume to know the appropriate exercise program for you with your specific health limitati...

Self-Advocacy

Your Life. Your Right. “You are lucky…you could have died.”   Those were the ominous words that came out of my rheumatologists mouth after she discovered the reason I was ill was due to ano...

Adapting to the Pain

Does the Pain EVER go Away? For someone who is newly diagnosed with lupus, one of the first things he or she will anxiously ask is… “Will my pain ever go away?”  Though I am not a doctor, I...

Remission Guilt

Is it Okay to be well? When I was in the hospital with lupus, I made friends with all the other teenage “regulars” who, like me, were frequent admits of the eighth floor.   All of my new friends...

AZATHIOPRINE and Lupus

What it is: Azathioprine or the brand name Imuran, is a drug that was originally developed to prevent organ rejection in people who had received a donor transplant.  Currently, in addition to its ant...

DHEA and Lupus

WHAT IS IT? Dehydroepiandrosterone, commonly called DHEA, is a hormone produced by the adrenal glands.  DHEA leads to the production of androgen and estrogen, which are sex hormones that play an impo...

Lupus and the Endocrine System

THE ENDOCRINE SYSTEM:   A powerful infantry of glands that affect virtually every cell and organ in the body – that with one blow may have one down for the count, waving a white flag of surren...

Methotrexate

Methotrexate is a disease-modifying anti-rheumatic drug (DMARD) that is used to reduce the swelling and pain associated with certain diseases like rheumatoid arthritis, psoriatic arthritis, vasculitis...